This NCEPOD report focuses on the quality provided to children and young people with chronic disabling conditions, focusing in particular on cerebral palsies. The report takes a critical look at areas where the care of patients might have been improved. Remediable factors have also been identified in the clinical and the organisational care of these patients.
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Recommendations Sheet (915Kb) |
Recommendation checklist (Excel A4 version only) (21Kb) |
Slides (Pdf version only) (2.1Mb) |
Each and Every Need videos Watch a video about the patient perspective of cerebral palsy care, featuring Christopher Myers here. Watch a discussion between Dr Kathy Wilkinson and Dr Karen Horridge about the report here. |
Each and Every Need - Clinical audit tools. (Link to a new page with MS Excel clincial audit tools for paediatric and adult clinical leads, emergency departments and allied health professionals.) |
Facilities checklist (Word) (93Kb) Fishbone diagrams (Word) (495Kb) Infographic - communication (pdf) Infographic - patient and carer experience (pdf) Infographic - transition (pdf) |
Speakers at the report launch were: Dr Belinda Crowe, British Academy of Childhood Disability (BACD) Dame Christine Lenehan, Council for Disabled Children Mr Mark Gaston, Royal Hospital for Sick Children, Edinburgh and Chair of Cerebral Palsy Integrated Pathway, Scotland (CPIPS) Ms Joanna Grant, Royal College of Nursing Dr Michelle Baylis, Association of Paediatric Chartered Physiotherapists Dr Andrew Long, Royal College of Paediatrics and Child Health |
Study Questionnaires (12 Qs.) |
