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National Confidential Enquiry into Patient Outcome and Death
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Home/Publications/Reports/ Long Term Ventilation (2020)
Long Term Ventilation: Balancing the Pressures
Date of publication: 13th Feb 2020

This NCEPOD report highlights the quality of care of people aged 0-24 receiving long-term ventilation.

FULL Report

Summary Report

Summary Sheet

Recommendation Checklist

Infographic

Slide Set

COMMISSIONERS’ Guide

Fishbone Diagram

Resources for young people and carers
National Tracheostomy Safety Project
WellChild
  • Act: Aid for Children with Tracheostomies UK
  • Banardos
  • Bliss
  • Breathe on UK
  • Capability Scotland
  • Contact
  • Council for Disabled Children
  • National Network of Parent Carer Forums
  • Royal College of Paediatrics & Child Health
  • Seashell Trust
  • Scope
  • The Children’s Trust
  • The Global Tracheostomy Collaborative


    • Study Questionnaires
    Below are a list of questionnaires used in the study available for download. Click each to download as a pdf file.
    Lead clinician Questionnaire
    Admission to hospital questionnaire
    Community team clinical questionnaire
    Tracheostomy insertion questionnaire
    Organisational questionnaire – Paediatric acute services
    Organisational questionnaire – Adult acute services
    Organisational questionnaire – Paediatric community services
    Organisational questionnaire – Adult community services
    Reviewer assessment form
    Health and social care professional survey
    Patient and parent carer survey