Data collection for study: Prospective: Monday 7th March 00:00 – Sunday 20th March 23:59
Retrospective: June 2016 Publication date: Autumn/Winter 2017
To identify the remediable factors in the quality of care provided to young people treated for mental health disorders; with specific reference to:
Depression and anxiety
To examine the interface between different care settings
To examine the transition of care.
Pathways and protocols
Referral criteria and pathways for CAMHS
The structure and extent of mental health services for young people
Accessibility of mental health services
Delays and barriers to referral
Third sector involvement
The organisation of services for young people in the hospital setting
Access (including point of access, systems to identify high risk individuals, decision making, peer support, and preventable admissions)
Training (including the training of staff in paediatric/non paediatric and emergency locations
Transition (including the age of transition to adult mental health services (AMHS, the accessibility of services, lifespan vs. separate mental health services, strategic planning between agencies responsible for mental health services, the extent of linked services, and the appropriateness of service needs for young people)
Interfaces (including local planning, linkage between primary and secondary providers, education and learning disability services, the handover of cases between hospital based services and the community, community based mental health teams, and family support)
Quality (including participation unit accreditation or peer review (including in Quality Networks for Inpatient/Community CAMHS), use of NICE/SIGN guidance, patient information, mechanisms for follow up, the availability of services, assessment of psychosocial needs and subsequent actions)
Appropriate use of risk assessment tools
Stigma, bias or prejudice and their impact on the quality of care
Inconsistencies in the level of care provided
Follow up following discharge
Multidisciplinary care (including handover and communication)
Care pathway (including emergency services, community assessment, access to community services, school and school exclusion, voluntary sector contributions)
Emergency Department/Emergency Medical Unit care (including the management and referral of those with self harm minor injuries, consent and confidentiality, facilities for young people, mental health liaison, self discharge, communication/training)
The number of admissions and readmissions
Primary reason for hospital admission
Measures of morbidity
The rates of consultation in primary care
Educational achievement at KS1 and KS2 and the proportion of children with SEN
Data will be collected on all service users aged 11–25 years who present to hospital with anxiety, depression, an eating disorder or an episode of self harming, during the study period. Data will be collected over a 2 week period which is to be determined.
The protocol can be viewed from the Download Section at the top of the page.
Two case identification spreadsheets will be used for this study.
Initially data will be collected prospectively on arrival at the Emergency Department or Assessment Area within both Acute and Mental Health Trusts. During the two week study period (to be determined) a study contact will be asked to record the details of all patients who present to the Emergency Department as a result of self harm, anxiety, depression or an eating disorder. Data collected will include patient identifiers (hospital and NHS number, DOB, gender), date of admission, the presenting condition for inclusion in the study (i.e. self harm), the date of discharge, the discharge destination, and the details of the clinicians who were involved in the care of the service user.
Three months following the close of the prospective data collection, local reporters in both Acute and Mental Health Trusts will be asked to populate the second case identification spreadsheet using the listed ICD10 codes in order to identify all service users with one of the listed ICD10 codes who were admitted during the study period. In addition to requesting the data for the same time frame as the prospective part of the study (to be determined), in addition data will also be requested for the 4 weeks prior. Data collected will include patient identifiers (hospital and NHS number, DOB, gender), date of admission, (the included) ICD10 code, date of discharge, discharge destination, and the details of the clinicians who were involved in the care of the service user.
The spreadsheet will be made available from this page at the time we are collecting data.
Service User and Carer Questionnaire
A short patient questionnaire will be disseminated electronically via NCEPOD’s network of local reporters and patient networks in order to gather data on young people and carers views on the services provided to them.
To take part in this questionnaire please click the following link.
Three organisational questionnaires will be used to gather data for this study:
Trust level organisational questionnaire
An organisational questionnaire will be sent to all Trusts within the acute and mental health sector, and also Independent and community providers where young people with mental health issues may be cared for to collect Trust level data on organisational aspects of care. The questionnaire will be disseminated electronically via the NCEPOD network of Local Reporters, who will be asked to send the questionnaire on to the most relevant person to complete. The Medical Director will also be contacted and informed that the questionnaire has been sent.
Service level organisational questionnaire
A sample of approximately 250 services (identified from the Trust Level Organisational Questionnaire) will be randomly selected and requested to complete a service level questionnaire. Again the questionnaire will be disseminated electronically via the NCEPOD network of Local Reporters, and Medical Directors will be notified that the questionnaires have been sent.
Commissioning bodies organisational questionnaire
A short organisational questionnaire will also be sent to commissioning bodies for completion. This will again be disseminated electronically, and will gather data around the commissioning of services.
All three organisational questionnaires will be made available for download.
Definitions for the questinnaires can be downloaded here.
The clinician details will be identified from the data collection spreadsheet. The clinical questionnaire will either be sent to the NCEPOD local reporter for dissemination or directly to the relevant person to complete. The clinician questionnaire will be made available for download.
To be determined.
An information sheet and a poster will be made available soon for Local Reporters on this page.
We are currently recruiting case note psychotherapy reviewers for this study, please view more details about this role in the Download Links section of the page, or click here to download application details.
This webpage is updated regularly, so please check back for more information shortly.
(Adobe Acrobat is required to veiw the pdfs above. The Adobe Acrobat reader is avaiable for free to download from here.)
(Microsoft PowerPoint viewer is required to view the presentation document above. This is avaiable for fre to download from here.)
Frequently Asked Questions
I work at a specialist children’s unit or community hospital, do we need to participate?
Yes, we will be covering all centres that see children and young people, although the degree of input will vary. We will be in touch with you over the coming months, but in the meantime if you do not currently submit data to NCEPOD then please either call us on 0207 251 9060 or email us at firstname.lastname@example.org – with the reference of ‘child health’, to register your details.